Sunday 23 February 2014
Friday 21 February 2014
Safety
Another seizure, this time outside the school on the unforgiving concrete sidewalk leading our daughter to her bus. No one we know saw it but I can only imagine that she crumpled down to the ground as people rushed to her aid. Blankets were found, emergency meds given, students backed away and gave her space. Miraculously she appears to be uninjured; a sore head, arm, jaw and neck but no blood, no cuts or scrapes. Unfortunately there was loss of bladder control which is something we have dreaded and vomiting. These details seem horrendous in hindsight but like the seizure cannot be helped and therefore are just details.
So a long wait in the Emergency Room at the local hospital is tempered by the kindness and competence of everyone we meet there from the ambulance drivers who wheel my daughter in because I cannot find parking to the doctor and nurses who treat us both with respect and and even a little humour. We leave with a prescription; perhaps this infection contributed to this particular seizure.
And now we deal with the aftermath. How do we keep our daughter safe at her high school while allowing her independence in her life? She cannot be accompanied everywhere it seems and yet these seizures strike with no warning, no aura. We will increase her antiepileptic medication in search of that elusive seizure-free state. There is no guarantee that at whatever level of meds, freedom from seizures will ever be achieved. How do we keep our daughter safe anywhere while encouraging independence in her life?
I don't know, do you?
So a long wait in the Emergency Room at the local hospital is tempered by the kindness and competence of everyone we meet there from the ambulance drivers who wheel my daughter in because I cannot find parking to the doctor and nurses who treat us both with respect and and even a little humour. We leave with a prescription; perhaps this infection contributed to this particular seizure.
And now we deal with the aftermath. How do we keep our daughter safe at her high school while allowing her independence in her life? She cannot be accompanied everywhere it seems and yet these seizures strike with no warning, no aura. We will increase her antiepileptic medication in search of that elusive seizure-free state. There is no guarantee that at whatever level of meds, freedom from seizures will ever be achieved. How do we keep our daughter safe anywhere while encouraging independence in her life?
I don't know, do you?
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