Monday 9 June 2014

Wind

      As each of her recent seizures result in greater injury  to our daughter, I find myself panicky at times. While she is home, I must know where she is, what she is doing, checking in, always checking in. The monitor gives some relief from worry at night. When she is at school, I check my phone constantly; when it rings I have momentary dry mouth, bodily anxiety as if I had drunk way too much coffee.
     As I explained to someone the other day, all we can do is increase the medication dose, make sure she is taking it, and is getting enough sleep, drinking lots of water, eating the right foods when she needs them and that she is not overheated or stressed. And we pray. A lot. At least I do.
     The seizures are getting milder and shorter. And we have room to increase the dosage on this medication. Our daughter is ever cheerful in the face of this challenge and we will walk beside her and hold her hand when she wants us to. We will pull in our oars and put up the sail. The wind blows where it wishes....
John 3:8