Sunday 18 February 2018

Marathon

 


     Today our eldest daughter participated in a half marathon in a neighboring town. It was a cold and icy morning though the roads were bare in our area and the sunrise was lovely if a little tentative. It is hard to get up most mornings but especially difficult on a dark winter Sunday morning when everyone else gets to sleep in. She had laid out all her clothes the night before and wasn't really looking forward to the run but was committed. I drove her to the meeting place and left her in the capable hands of her BUILD leaders and teachers.
     Getting back home, I was mad at myself for not being more organized to register in time and accompany our daughter on the walk. I could certainly use the exercise! We do so much together though that I worry about her independence. Years of seizure activity and the accompanying anxiety have relentlessly kept me at her side. She is now a year seizure free and we both need to learn to step away from each other sometimes. It is difficult for both of us.
     It being icy, our daughter fell and had trouble getting up again. Of course there were many friendly female hands to help her up again and encourage her to keep going. She linked arms with one of her leaders and finished the marathon, proud of her medal if a little sore. I was so glad to know that she was able to do this run, not without help, but independently, without me. These are baby steps for both of us, away from each other. In her case it was about twelve thousand steps but I was thrilled to hear about every one of them.


Saturday 3 February 2018

One

     She is one year seizure free! Our daughter started having seizures at eighteen months of age. Other than a two year break between the ages of five and seven and again between the ages of eleven and thirteen, epilepsy has been a large part of her life. Our daughter experienced two-thirds of her seizures during her five years at high school. She had her last seizure (and her last trip to the emergency ward) on February 2, 2017. Thankfully she only broke her hand and nose, split her lip and lost a front tooth.
     What does it mean to our daughter to be one year seizure free? First and foremost, she has less fear that she will have a injury-causing seizure in an unsafe public place. It means her being able to be home alone from time to time. She loves that!  It also makes her feel that she can be like other people her age, not to mention not having to take her mother along to the movies or anywhere for that matter, nice as she is!?
     For us, it means the possibility that she can one day go without antiepileptic medications, the opportunity for her to work or go to school without always being accompanied and of course, hope for a seizure free adult life, a life concentrated on enjoying living rather than fearing injury or even death.
     Whether our daughter is seizure free due to less stress in her life, the medications finally working, outgrowing her seizures or the answer to prayer, here it is. This reprieve from epilepsy for a year has been my most cherished wish, my most fervent prayer and I am sure that that is true for my husband and both our daughters and other family as well. If you too helped Hayley get here, then we thank you. We thank God and we thank you....