After yet another seizure, this one at school in front of peers, it was decided by the teachers that the class would need to be debriefed. They had been evacuated from the room to give our daughter some privacy while the seizure occurred. This happened right at the end of the last class on Friday afternoon and so over the weekend some students probably wondered about her, what had happened and why.
Our daughter's first reaction was to not want to be a part of this explanation to the class. She was embarrassed to have had a tonic clonic seizure which lasted seven minutes in front of anybody, much less any of her classmates. At fourteen years old, who can blame her; at fourteen we don't want to be perceived as different, and certainly not this different. We talked about it over the weekend, listened and talked some more. And I think I heard her and I think she heard me because I left it up to her and she chose the harder road.
On Sunday she indicated that she would be wearing purple to school on Monday; purple for Purple Day, the Epilepsy Awareness and Education Day, which was started by another 14 year old Canadian girl named Cassidy Megan when she was nine years old. And on Monday afternoon our daughter stood up in front of her class with her teacher who explained what had happened. I wasn't there and did not hear what was said but just knowing that makes me incredibly proud of her. It is no easy thing to tell your secret to relative strangers or even to stand there while someone else tells it for you. Her teacher called her a brave young woman. Yes she is.
We have no idea what will happen in the days to come but know that we will count them. We will count them as the days since her last seizure but we will also count them as the days since she stood up, answered questions and looked her classmates in the eye. We could not be more proud or more grateful to know such an amazing person.
Our daughter's first reaction was to not want to be a part of this explanation to the class. She was embarrassed to have had a tonic clonic seizure which lasted seven minutes in front of anybody, much less any of her classmates. At fourteen years old, who can blame her; at fourteen we don't want to be perceived as different, and certainly not this different. We talked about it over the weekend, listened and talked some more. And I think I heard her and I think she heard me because I left it up to her and she chose the harder road.
We have no idea what will happen in the days to come but know that we will count them. We will count them as the days since her last seizure but we will also count them as the days since she stood up, answered questions and looked her classmates in the eye. We could not be more proud or more grateful to know such an amazing person.
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