Thanks to all of you my previous post about the callous way in which our daughter and her dad were forced off their cruise vacation on board the Royal Caribbean Cruise "Adventure of the Seas" was seen by over eight hundred and seventy folks! That's astonishing to me! The positive comments and votes of confidence have done much to bolster our daughter's feelings and sense of self. In my opinion it is bad enough to endure the indignity and chaos that a life with epilepsy provides without being forced to feel as though she had any choice in the matter: seizures happen. It's up to us to move on from there and live our best life.
At this moment, we have had no response except an email sent on the seventeenth of March asking for our patience and understanding while they review our concerns which they estimated will take a few business days. Which means that it has been ten days with no response. Therefore the only thing I can gather is that folks with epilepsy are not welcome on their cruise ships. We of course will never be taking that type of vacation again. It is very disappointing because it seemed as though the world had taken great strides in it's empathy for and acceptance of people with extraordinary needs and specifically epilepsy.
This week our daughter will do her sixth consecutive Purple Day talk at her sister's elementary school. She will tell the kids what to do if they see someone having a seizure. She will talk to them about Purple Day and why a Canadian girl thought that epilepsy awareness was a good idea. She will let them know that people with epilepsy sometimes feel alone in the world. She will teach younger children that kids with epilepsy are just like anyone else. They just need a little comfort for a few minutes from time to time. A little comfort and a little understanding.
At this moment, we have had no response except an email sent on the seventeenth of March asking for our patience and understanding while they review our concerns which they estimated will take a few business days. Which means that it has been ten days with no response. Therefore the only thing I can gather is that folks with epilepsy are not welcome on their cruise ships. We of course will never be taking that type of vacation again. It is very disappointing because it seemed as though the world had taken great strides in it's empathy for and acceptance of people with extraordinary needs and specifically epilepsy.
This week our daughter will do her sixth consecutive Purple Day talk at her sister's elementary school. She will tell the kids what to do if they see someone having a seizure. She will talk to them about Purple Day and why a Canadian girl thought that epilepsy awareness was a good idea. She will let them know that people with epilepsy sometimes feel alone in the world. She will teach younger children that kids with epilepsy are just like anyone else. They just need a little comfort for a few minutes from time to time. A little comfort and a little understanding.
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