Thursday, 1 June 2017

Whisper

     I am almost afraid to say it out loud so I will whisper it and hope that you hear: Our daughter is four months seizure free for the first time since she started high school....five years! Of course, she could be at school having a seizure as I write this; it all could change in the blink of an eye. However I am willing to chance it and celebrate the possibility that our daughter could have relatively longer periods of seizure freedom. Could we even dare to hope that she has grown out of her epilepsy? It is possible, as there is no physiological occurrence that could explain her seizures--- no tumours, no lesions, nothing readily visible. But it is too soon for that and I must remember to take each day as it comes...life is change after all.
     As our daughter prepares to leave high school behind and start this next chapter of her life, we pause to look back at all that she has accomplished and what did not go well. Her teachers and classes were great and the environment at school though crowded, was relatively supportive. Friendship and the ability to find a welcoming place to eat lunch every day did not happen until the very end of Grade Twelve but all in all, it was fine. Our daughter had the majority of her seizures in the past five years, many of them while at school but she was never bullied or ridiculed because of it. Many people at school were more caring towards her as a result. Her high school administration has also been very accommodating in attempting to keep her graduation event participation short and therefore more stress free. With less than a month to go until the end of school, life for her seems positive and full of possibilities. Maybe we can turn that whisper into a shout....


2 comments:

  1. Hayley has matured to be a very sweet caring individual. I credit the guidance, care, patience,diligence of you Jacqueline. Her sibling has truly watched over her as well and her father but you have advocated and stood by her side to make her journey as safe and rewarding as possible. I am so proud of all of you.

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  2. Love you Mary...thank you for your support of ALL of us!

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