Virus 4

     First the basics: cough, sore throat, runny nose and fatigue. Then the next few: fever, chills, body aches and headache. Add the odd: tinnitus, nausea and pink eye. Then the losses: loss of appetite, loss of energy, loss of sense of taste and of smell, and in my case, loss of hearing in one ear. Combine for ten to fourteen days with two vaccinations, extensive time at home in bed and you have it: a breakthrough case of COVD-19. Unremarkable, unavoidable and completely survivable but something that I would not wish upon anyone.

Playing

      After months and months our daughter is back to the courts, basketball courts that is. Special Olympics BC basketball is back on and our daughter is glad. She is glad to see her teammates and friends, glad to see the coaches and their helpers, glad to be back playing again. Of course things look a little different: there are masks to wear, hand sanitizer to distribute, basketballs to clean and distance to keep apart. But it is all good. Everyone seems happy to be back and part of this valuable and fun program. And I myself have a new volunteer role, keeping track of everyone and making sure that folks are vaccinated, masks are worn and hands are sanitized by everyone going in and out of the gym. It sounds time-consuming and it is. Not only do coaches have to remind everyone about respecting each other but now there is an added layer of health concerns which is vital considering that many folks with disabilities have comorbidities or additional conditions that make their health fragile. Whether they have autism or epilepsy, Down syndrome or cerebral palsy, fetal alcohol syndrome or nonverbal learning disorder everyone there was happy to be back and happy to do whatever had to be done to get there. And really isn't this what Special Olympics is all about; their mission is "dedicated to enriching the lives of individuals with intellectual disabilities through sport." And you can't do that with the gyms locked, the courts empty, the pools unused and the lanes quiet. So yes, the game is on and we are excited. It was definitely worth the wait to see all those happy familiar faces. Thank you again SOBC basketball coaches! Your dedication to all of us is appreciated....

Home 2

     We are bitterly disappointed by the results of the Surrey City Council meeting that saw Harmony rejected by the councilors by a vote of 5-4 with the mayor again refusing to support this worthwhile and much needed project. And again there was no explanation as to why this occurred. Most of us take having a home for granted. Most of us lived with our parents as children and then moved into various rental accommodations as young adults. Then if we had the money we found a way to get a mortgage and spend the rest of our lives paying it down. That is my experience anyway. And having lived in B.C. for over forty years I know how expensive and elusive housing here can be. But I have always had a place to live. How about you? 

     Most of us assume that our children will follow in our housing footsteps, more or less. We assume that they will have a place to live. But what about if they were intellectually disabled? What about if they were underemployed and could not afford the expensive rents currently demanded in most parts of the Lower Mainland? What if they were new to this country and needed community support to get started here in Canada? What if they were a single parent? A retiree? Someone new to the job market without a great deal of savings? A student with loans to pay who needed a break to get established in the community? 

     Fortunately for us our daughter comes from a very large family of caring folks who would probably help her. But this is not true for everyone. In this community however we have this amazing opportunity to provide a place to live for everyone; a spot where disabled people, retirees, students, immigrants and single parent families could afford to call home. This place is called Harmony. Tomorrow the people who want to live there are going to come together on site for a photo opportunity and a reporter from the local paper will be there as well. Our daughter and many of her friends and acquaintances will be there. These are people that want to live somewhere special. They want to live in Harmony! Please check out @uniti4all.com for more information. #WeNeedHarmony.

Lawrence

      Dear Dad,

     You're getting on...I know this because you gave me your D. H. Lawrence collection. Thirty-nine books, most of them by him, some just about him, are mine now. You did it casually, just asking in the middle of another conversation if I would like them. I said yes of course. I might be worried except you have been getting rid of a lot of possessions lately. I think that if Mum weren't still alive you might be living in an almost empty house. She likes to keep things and you like to give them away....
     Your admiration for D. H. Lawrence started just after I left home. I was about seventeen years old. I seem to remember that you took a continuing education course in English Literature and fell in love with his ideas about love. You had grown up in England at a time when he was considered a very controversial writer. One or two of his books may of even been banned. I remember a difficult conversation about that one night after I brought my college English professor home for dinner. Suffice it to say that my teacher's opinion of Lawrence did not endear him to either one of you at the time.

     I also hold Lawrence in high regard. His writing is forthright, beautiful and honest. It was the first writing about love, sex and class that I remember reading. The glimpses he gives into other's lives at other times and in other worlds are exceptionally clear and unapologetic. 

      Anyway I left home and ended up in Louisiana married and apparently allergic to fire ant stings. An anaphylactic experience sealed the deal when I almost died. And so my husband and I came back to Canada. I clearly remember you and I going to see the film "Lady Chatterley's Lover" in Calgary. It was the first 18+ movie I had ever seen. I remember wondering aloud if they would check my identification. You laughed at the idea because I was so obviously attending the film with my father, according to you. The film was beautiful, real and vivid and honest; I loved it. I bought a copy of it on VHS as soon as I could and watched it many times.

     The fact that you are giving away your most long-kept and precious books and the apparent relief it gives you that they were wanted by a family member tells me that you are looking at the end. We all look at the end from time to time but I would imagine that being in your late eighties gives you a particularly close vantage point. I know that you aren't afraid to die. Your faith gives you answers to any questions about what comes next. I know your own parents turned to God when your eighteen year old younger brother Michael committed suicide. Your life was not always easy especially at the beginning but according to you, you have been blessed: a strong marriage, five children, many grandchildren and great grandchildren, an interesting engineering career and good health. 

     I just wanted to tell you that you have been a wonderful father--- a great dad and a good friend. Even when we didn't agree on things (many things as I recall in my teenage years) you have always been there for me and for that I am forever grateful. And every book that I pick up for the rest of my life will remind me of you, no matter the author and that is a gift for which I could never thank you enough.

I love you Dad! 

     

     

Memories

    

     My aging brain plays the usual tricks on me...."What is that actor's name?"... "When is that appointment again?"... "Who did we see at the Orpheum, the last time we went?" You know, when a word won't come to you right when you want it and it shows up later?  Maybe you don't know but I do. And of course I worry about that, like any other soon-to-be sixty-four year old. But that's another story. 

      Lately I have been seeing more and more posts on Facebook from my high school peers and friends. The familiarity and the nice feeling I get from seeing their faces, whether old, like mine is now or young, when I knew them and saw them pretty much everyday is surprising to me. These are folks that I have not seen almost without exception for almost fifty years! Fifty! Well actually forty-seven but who's counting? I guess I am....

     Perusing my long lost recently found 1974 grad year book again was like greeting an old friend, albeit one that I have not seen in a very long time. So many familiar faces, vague memories, old remembrances and the photos! People I knew looking exactly like people I now know on social media just younger. Maybe everyone else is sick of us Baby Boomers reminiscing but I'm not. I guess I love how people look like themselves even when a lot of time has passed. I am happy that our younger daughter wears a ring I wore when I was her age. It's cool to share a Jackson Five video from 1974 with our older daughter, back when Michael was sixteen and looked it. I don't mind that tie dye and flared jeans are back. I have never been able to find a different way to wear my hair other than the way I wore it back then... and I guess that finally, I am okay with that.

Harmony

      Ever since our daughter was old enough to put it into words and action she has been doing one thing: saving her money. First she was saving for a purple Mini Cooper and then when epilepsy made driving impossible, she kept working hard and is now saving for a home, saving for her future. Our daughter has an intellectual disability which means that she would need to live in a very special place; a place that was affordable, accessible and supportive. A place like Harmony.

     Unless you have a relative with a disability you probably do not realize how lucky we are to live in Surrey. Here we are fortunate enough to have UNITI. According to the website:

 "UNITI is the partnership of the three affiliated societies that have provided important community services for decades. Semiahmoo House Society provides quality services and supports to people with disabilities and their families in Surrey and White Rock. Peninsula Estates Housing Society provides affordable and inclusive housing that reflects the diversity of our community. The Semiahmoo Foundation ensures that UNITI has the recognition, relationships and resources to support an inclusive community." This combination of these three vital organizations in our community makes us unique. 

     Since she is now an adult, our daughter realizes that she will not always live with us, her parents. We are already older than most of her peers' parents so time is important. Every day is an opportunity for our daughter to add to her skill set and knowledge base in order to become more independent. Disabled folks like her have the right to live independently in a community that lifts them up and supports them. And as their literature explains, Harmony is a 91 rental home, 6-storey inclusive building which will be affordable and inclusive housing for the life of the building. It will house families, seniors, people with disabilities and others. 

     If you want to help, this is what you can do:

1. Please email Surrey City Planner Christa Brown at Christa.Brown@surrey.ca  2. Follow us on @uniti4all on social media for updates. #3. Sign the petition. #WeNeedHarmony. Our daughter is counting on you!

Life 2

     It feels trite and silly to be posting photographs of cabbage recipes and bearded irises when three thousand miles away family members are mourning the loss of their daughter, granddaughter, cousin and niece. But that's what I am doing. It feels pointless and even reckless to be shopping for groceries when even little ones are now losing their life to COVID. But that's what I am doing. It feels sad and selfish to attend video taped church services when so many feel hopeless. But that's what I am doing. It feels like a waste of time to have a zoom meeting about our RESP when our younger daughter is so full of anxiety and dread. But that's what I am doing. It feels ridiculous to write about resilience and strength when our daughters are worried and scared. But that's what I am doing. I am working and sleeping and cooking and cleaning and driving and walking and sitting and watching and singing and praying and sewing and weeding and raking and talking and listening and fetching and thinking and feeling and living every day. Because that's what you do.