Our eldest daughter has always loved the colour purple: purple clothes, purple stones (which are amethyst and not her birthstone), purple shoes (like Justin Bieber used to wear) even purple sheets. So it worked our perfectly when it turned out that the internationally recognized day for epilepsy awareness was Purple Day. Whenever our daughter has done her Purple Day talk at the local elementary schools talking about her life with epilepsy, she explains that " Purple Day is purple because the lavender flower is purple. Lavender is associated with feeling alone. Many people with epilepsy feel alone. It is hard when you feel like you are different from everybody else." Scrolling down any of the epilepsy Facebook pages you become aware of how true that is. Feeling different is a terrible burden, particularly when you are a young person. And epilepsy does not usually help you make friends, as our daughter can attest. Seizures are dangerous, scary, isolating and in many cases, uncontrollable. As our daughter continues with this new medication we say a silent prayer that this will be The One. This is no doubt a prayer that many parents utter. We were sad to note that Cassidy Megan, the seventeen year old girl who started Purple Day, had been struggling with seizures and had spent much of the holidays recovering. Recently our daughter had a seizure at a Vancouver Canuck's game which demonstrated to her that sometimes people can be very nice to someone with epilepsy however as we all know, that is not always the case. Anyway my "New Year, New You" resolution is to worry less and be more positive, something our wise, wonderful and eternally optimistic daughter does already every day.
Written by a parent for parents of children with epilepsy, Nonverbal Learning Disorder, Autism Spectrum Disorders, learning disabilities and other special and additional needs.
Tuesday, 3 January 2017
Purple
Our eldest daughter has always loved the colour purple: purple clothes, purple stones (which are amethyst and not her birthstone), purple shoes (like Justin Bieber used to wear) even purple sheets. So it worked our perfectly when it turned out that the internationally recognized day for epilepsy awareness was Purple Day. Whenever our daughter has done her Purple Day talk at the local elementary schools talking about her life with epilepsy, she explains that " Purple Day is purple because the lavender flower is purple. Lavender is associated with feeling alone. Many people with epilepsy feel alone. It is hard when you feel like you are different from everybody else." Scrolling down any of the epilepsy Facebook pages you become aware of how true that is. Feeling different is a terrible burden, particularly when you are a young person. And epilepsy does not usually help you make friends, as our daughter can attest. Seizures are dangerous, scary, isolating and in many cases, uncontrollable. As our daughter continues with this new medication we say a silent prayer that this will be The One. This is no doubt a prayer that many parents utter. We were sad to note that Cassidy Megan, the seventeen year old girl who started Purple Day, had been struggling with seizures and had spent much of the holidays recovering. Recently our daughter had a seizure at a Vancouver Canuck's game which demonstrated to her that sometimes people can be very nice to someone with epilepsy however as we all know, that is not always the case. Anyway my "New Year, New You" resolution is to worry less and be more positive, something our wise, wonderful and eternally optimistic daughter does already every day.
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